Monday, July 2, 2012

Duchenne Muscular Dystrophy

Jake and Stephanie, aka Mom!
Many of you know that Camp Jake is named in honor of Jake Richard, the vibrant nephew of Tom, our Camp Director. Jake has Duchenne Muscular Dystrophy (DMD) and it was his dream to begin a camp for handicapped kids.

DMD is a serious disease that affects all muscles in the body, including the heart. This is most commonly seen when those affected are in their late teens and early 20s.
Jake during one of his many runs with his mother
It is difficult for us to share that our Jake's heart is seriously affected by this disease. To compound the condition, he also has severe scoliosis and is unable to have surgery due to his compromised heart.

Despite these challenges, Jake's spirit remains positive and he is anxiously awaiting Camp Jake. While he can not actively participate in camp, we are confident that he will be checking the blog and Facebook daily as we give frequent updates on the campers and our activities.

We invite you to help us keep Jake's spirit alive and well in the July session of Camp. Donations are being accepted in his honor via PayPal (link on the right) or check. Please be sure to mark the memo line with Camp Jake. 

The Red Thread Promise
20 Brookfield Avenue
Glen Rock, NJ 07452

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