Dr. Kanter, Christopher and Kathy
We’ll tell you who dat doctor – it’s Dr. Julie Kanter from Tulane Hospital for Children and the Sickle Cell Center of Southern Louisiana. She delivered the best news today that we could have hoped for: based on extensive blood work and tests performed in New Orleans, Christopher does not have sickle cell disease!
One happy father and son!
- How did this misdiagnosis happen?
- What does this mean to Christopher in the future?
- How can we ensure that another child isn’t misdiagnosed?
What does this mean to Christopher? It means he WON’T have to be on penicillin and folic acid for the rest of his life. He won’t have to undergo yearly testing to detect his propensity for strokes. He won’t have painful episodes that often lead to hospitalization and blood transfusions. Since he does have sickle cell trait, it DOES mean there is a 25% chance that he will pass along the trait or the disease to his children. It also means the he should have his spouse tested. If she has the disease or the trait, it drastically increases their chance of having a child with sickle cell. Christopher will see a sickle cell specialist in his teens for further testing and counseling in these matters.
What does it mean to other children? When children receive a positive diagnosis for sickle cell, adoptive parents, caregivers and orphanage directors can request additional tests to confirm the diagnosis, avoiding unnecessary, costly and intrusive medical intervention.
The Tulane team
We want to thank everyone—in Haiti, the US, Saudi Arabia and Canada—for their support of this child. Everyone played a critical part in Christopher’s life—from thoughts and prayers to financial support to medical treatment. Now he is in the loving arms of his forever family and to them we say, “Take care of our boy that we have loved for the past 3 years. He will be in our hearts forever.”